420029, Russia, Kazan, 8 Marta st., building 18, Center for NGOs, office.301 Certificate of state registration of the January 24, 2011
BIN 1111600000247, dated 1 February 2011
ITN / code of reason for accounting 1659119049 / 165901001
Ph: 0079872974440 / 0079872975550 worldcongress2016.rettsyndrome.ru
VIII World Rett Syndrome Congress Kazan, Russia, 13-17 May 2016, «Riviera» Hotel
The international Rett syndrome community is waiting for this event every four years. This year it will take place in the oldest and one of the most beautiful Russian cities Kazan, the largest religious, economic, political, scientific, educational, cultural and sports center of Russia with a 1000 year history. The Kazan Kremlin is one of the UNESCO World Heritage sites.
Inviting outstanding Russian and foreign experts and practitioners, professors of medical and other universities, special educators and specialists of rehabilitation centers, representatives of legislature and executive, we want to share knowledge and the latest scientific achievements in the field of rare diseases, Rett syndrome, experience of working with them as well as the best solutions in their day-to-day life, social support of their families.
Using the example of Rett syndrome we want to show that a rare disease SHOULD NOT limit the lives of the patients. Their lives can be full, bright, and long! We sincerely thank the scientists who stimulate science and research and look for the cause and cure! We are immensely grateful to practicians who help us to overcome the trials and difficulties of development! We say «thank you» to representatives of the authorities, who do not just listen and tell us that we are doing great, but also take the same path, creating new laws and developing a conceptual change in an accessible environment for all in everyday life! The
The Scientific Committee of the Congress is represented by 15 researchers from Australia, Britain, Israel, Italy, the Netherlands, Russia, USA, France, and Japan.
Members of the Congress:
Outstanding scientists in the field of rare diseases and Rett syndrome; Experts: doctors, teachers, psychologists, therapists;
The leaders of patient organizations and representatives of non-profit organizations; Parents and relatives of people with Rett syndrome;
Representatives of the authorities.
Opening and closing ceremonies of the Congress, lectures for scientists; School for physicians;
Seminars for rehabilitation centers and inclusive schools; Discussion area for parents and relatives;
Consultations and meetings with specialists for families; Round tables and workshops for the media, NGOs, volunteers; Socio-Cultural program.
On behalf of the Organizing Committee and the Association of Rett syndrome in Russia we thank you for your trust and wholeheartedly invite all those who cares about difficult situation of people suffering from rare diseases to take part in the Congress.
Registration process is simple: at worldcongress2016.rettsyndrome.ru click on the green button «registration». If you have any questions, please contact us at email@example.com
Congress Address: Kazan, F. Amirkhana st., 1, «Riviera» Hotel
WELCOME TO KAZAN!