On 11.30.15 the regular meeting of the organizing committee of the World Congress on Rett syndrome was held: we are now working on current issues of preparing, interaction with the authorities and the media, the national associations, scientific and cultural programs. Chairman of the Scientific Committee I. Yurov was with us on Skype from Moscow. The registration for the Congress website is now open and we are doing correspondence with the speakers. By the new year we will publish the names of the first guests of the Congress! worldcongress2016.rettsyndrome.ru/en/