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06.05.2016. VIII World Rett Syndrome Congress Agenda Kazan, Russia, 13-17 May 2016
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28.03.2016. VIII World Rett Syndrome Congress Kazan, Russia, 13-17 May 2016, «Riviera» Hotel
Rett Syndrome Association invites you to participate! The
01.12.2015. The regular meeting of the organizing committee of the World Congress on Rett syndrome was held on November 30, 2015
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15.07.2015. The new meeting of the Organizing Committee of the World Congress on Rett syndrome took place on July 10th, 2015.
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Marathon in Kazan

May 11, 2015 on the area of the Kazan Arena stadium in Kazan the athletics marathon started. All those who run the 42.195 km and 21.097 km marathon ran through the most beautiful streets of the capital of Tatarstan. This marathon was held in a modern format of the show and the pleasure of running for all. Another distance for those who wanted to take part in the marathon was 5 km.

Within the 5-kilometer distance athletes ran in support of children with Rett syndrome. It is Important that the support group included students, alumni and teachers of KSMU, headed by the rector A. S. Sozinov; students of Architecture and Construction University, leaders and members of social organizations as Union of patients and patient organizations on rare diseases (Moscow), CF "Window to Hope", ICPO «Society of disabled people suffering from Hunter syndrome", members of the Civic Chamber of the Republic of Tatarstan.

At the awards ceremony on the results of the 5-km run the Rector of KSMU, Chairman of the Organizing Committee of the Congress on Rett syndrome A.S. Sozinov said:"I want to draw your attention to the action inside the action. Kazan Medical University ran today in support of children with rare diseases. Exactly one year later Kazan will host the World Congress on Rett syndrome. Such children are few, but they are waiting for our help. Please note - these children are now also the winners! Please support our action, and you will support children with Rett syndrome!"

Bright yellow and purple balloons flew in the sky at the finish, as a symbol of organizations supporting people with rare diseases, and the winners were greeted with medals of the Marathon and flags of the Association of Rett syndrome.

#Repost На Казанском марафоне 11 мая стартовал обратный отсчет времени до Мирового Конгресса по синдрому Ретта, который ...

Posted by Vera Zvonareva on 11 Май 2015 г.

Казанский марафон! 11 мая. Старт обратного отсчета времени до Мирового Конгресса по синдрому Ретта, который состоится в Казани в мае 2016 года! Ура!

Posted by Ольга Тимуца on 11 Май 2015 г.

Казань. Марафон. Редкие, но сильные ВМЕСТЕ!

Posted by Snezhana Mitina on 11 Май 2015 г.

14.05.2015 19:13