Dear friends!

Setting up the "Rett syndrome association" in Russia became possible after the famous Russian tennis player Vera Zvonareva started talking about it.

On February 1, 2011 the Association was registered!

The association was created for the purpose of assistance to carrying out research on problems of diagnostics and rehabilitation of RS; rendering of information and advisory services and help to families with RS people, and also to institutions which promote medical and pedagogical scientific research of the syndrome and assist people with RS and their families.

Marathon in Kazan

May 11, 2015 on the area of the Kazan Arena stadium in Kazan the athletics marathon started. All those who run the 42.195 km and 21.097 km marathon ran through the most beautiful streets of the capital of Tatarstan. This marathon was held in a modern format of the show and the pleasure of running for all. Another distance for those who wanted to take part in the marathon was 5 km.

Within the 5-kilometer distance athletes ran in support of children with Rett syndrome. It is Important that the support group included students, alumni and teachers of KSMU, headed by the rector A. S. Sozinov; students of Architecture and Construction University, leaders and members of social organizations as Union of patients and patient organizations on rare diseases (Moscow), CF "Window to Hope", ICPO «Society of disabled people suffering from Hunter syndrome", members of the Civic Chamber of the Republic of Tatarstan.

At the awards ceremony on the results of the 5-km run the Rector of KSMU, Chairman of the Organizing Committee of the Congress on Rett syndrome A.S. Sozinov said:"I want to draw your attention to the action inside the action. Kazan Medical University ran today in support of children with rare diseases. Exactly one year later Kazan will host the World Congress on Rett syndrome. Such children are few, but they are waiting for our help. Please note - these children are now also the winners! Please support our action, and you will support children with Rett syndrome!"

Bright yellow and purple balloons flew in the sky at the finish, as a symbol of organizations supporting people with rare diseases, and the winners were greeted with medals of the Marathon and flags of the Association of Rett syndrome.

Founder of the Rett syndrome Association Vera Zvonareva starts a campaign "SunAngelDonate" to raise funds.

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